Saturday, July 24, 2010

Down the rabbit hole and back out again - now where's that shovel?

When I get really down and depressed I always say I'm in a hole, and I'll eventually dig my way out.  I usually do or I wouldn't be here. I'd be in a hospital somewhere medicated to high heaven I'm sure if I didn't have the love and support of numerous friends and family.

Of course the hole I'm picturing  is Alice in Wonderland and there's no wacky Mad Hatter to greet me.  I know eventually I'll get out but it's scary all the same.

I'm fortunate I have people that help pull me out of that hole whether they know it or not.  I have my husband, Rich, who does a lot for me and brings me Junior Mints and flowers.  He makes me laugh a lot, and I know I'm loved.  We've been through a lot together.  He also supports different treatments I've tried.  He's one of my biggest cheerleaders.

I have my mom who I can still talk to about things, and she still calls me her "baby" at 52.  She makes me laugh a lot and by her example shows me the strength to go on.  She's had bouts of depression yet she's still working at a check cashing establishment where she stands most of the day - at 71.

I have my online friend Bev.  Thank God for voice chat - since she's in Florida.  Both her and her husband are disabled yet we talk for at least 2 hours about everything - and she got my mind off of being chronically ill and made me feel like a crafty, creative person.  Even in bad times we always seem to laugh at least once in our conversations.

I have my daughter and grandchildren.  They make me think that I need to go on and guide them, love them, and for the grandkids - spoil them LOL.  I remember growing up with my grandparents and I can't think of growing up any other way - they taught me a lot also.

I have my online support group Chronic Babes and the ladies whose blogs I follow from that group.  Thanks for making me think, hope, be proactive, and have some really neat online friends!

Tuesday, July 20, 2010

Twitter Tuesday - two I follow and other stuff going on

This is just my opinion after reading and not really knowing these two women.  Yes I do follow them and read their "tweets".  Wonder what it is when you tweet drunk LOL?  I'm not one for coining words or making them up (I always use spell check) but how about "twoops"?  "Sorry too much wine last night - twoops!"

First off - Lindsay Lohan.  She's been in the public eye since age 10 on "Another World" , then the remakes of Parent Trap for Disney.  I did like her in  "Georgia Rule" seeing the movie after I heard about Jane Fonda not being so nice to her in print.  She can be another Robert Downey, Jr., who was and is a talented actor who finally got sober after being in trouble and going to jail to resurrect his career OR she can be Heath Ledger, River Phoenix - who died young from drugs.

Of course this is close to my heart because of my daughter struggling with addictive behavior.  I know people are born with this behavior and circumstances like home life or lack of one can bring it on.  I think Lindsay's mom and dad wanted to be "friends" with her - like I was with Amy.  Wrong choice.  Now all I can do is say I love you no matter what and encourage her to be the smart girl I KNOW she can be.  Lindsay does have talent and she needs people that encourage that talent.  Maybe an older actor/actress can be her "mentor".  I wish her the best and think that really this jail sentence might be just the thing to help her.

OK Sarah Palin.  Buzz about her "goof" (see below) and then her response about making up words and didn't Shakespeare do that also?  She graduated University of Idaho majoring in journalism.
  1. "Refudiate," "misunderestimate," "wee-wee'd up." English is a living language. Shakespeare liked to coin new words too. Got to celebrate it!













  2. Peace-seeking Muslims, pls understand, Ground Zero mosque is UNNECESSARY provocation; it stabs hearts. Pls reject it in interest of healing













  3. Peaceful New Yorkers, pls refute the Ground Zero mosque plan if you believe catastrophic pain caused @ Twin Towers site is too raw, too real

As usual she's stuck her foot in it again.  Maybe I'm terribly naive but I believe there are good and bad in all races, religions, cultures.  I may not believe what the Muslims believe (I don't follow any religion), but just like any religion here in America they have the right to practice it.  And Sarah Palin got a degree in JOURNALISM - really??  OK it's not about Sarah but I did like the segments they did on SNL LOL.  And poor Jon Stewart is on vacation and missing all the fun!

OK I don't know her but I follow her too but I love her - Bethenny Frankl!  Shout out to her today being a co-host on The View.  Love Whoopi, Sherri, even Elisabeth sometimes but Joy is SO annoying!  I'm sure Bethenny can hold her own with her.

Update on my taking Low Dose Naltrexone.  I took the first dose on Thursday, July 15th at 9:00 pm.  It's recommended you take it at night - it will work better.  When I took it I felt kind of "jittery" like too much coffee.  Friday I felt energetic and did some household things.  I can still feel the joint pain and took some extra strength Tylenol.  I've had neck and back pain - that's what started my "journey" to finding out it was fibromyalgia - and that's lessened somewhat.  My pain kind of comes and goes but I've only had one bout of being tired for no reason.  It's no "miracle" cure but I think with me as with anything else it's going to be a long journey.  I'm also thinking of taking DL-Phenylalanine (DLPA) which would help the LDN.  It's not even been a week but I am seeing some result.  I'm going to give it a month.


Links I find interesting:


http://www.nytimes.com/2001/10/01/arts/critic-s-notebook-live-from-new-york-permission-to-laugh.html
after Sept 11th - permission to laugh again

http://www.mtv.com/shows/real_world/neworleans2/series.jhtml
ok I have to admit - guilty pleasure LOL

http://www.nbc.com/saturday-night-live/video/update-amys-goodbye/1087961/
was trying to look for a "Governor Paterson" SNL - I was almost ready to cry along with Amy LOL - and I found this instead.

http://circlingmyhead.blogspot.com/2008/02/in-beginning-there-was-no-light.html
and ok this is about a woman starting out a blog knowing she was going to die but she lives on in her children and grandchildren.  Posts are by Renee Khan who's first entry includes "“I have grieved for the life I thought I would have and I have lived in the shadow land. BUT NOW! I have returned and have chosen to be happy, to care and to love.

I got lost in this blog last night - it's beautiful.


Have a great day everyone - I know I will.

Thursday, July 15, 2010

*8 Things Thursday - Honoring Places

YAY it's back LOL!  I like having a "subject" and Magpie Girl didn't disappoint me since my brain is kinda muddled today.

Anyone I talk to I mention my hometown foods and where I really haven't gotten a good hoagie or cheesesteak since a shop down in San Diego owned by a South Philly native.  He even had Tasty Kakes!

OK I need to find other stuff than food in Philly LOL and here goes:

1.  Big piles of leaves in the fall and jumping in them after school.

2.  Going to the Philadelphia Zoo with Rich, and he proposed to me after we got back to my house.

3.  Driving a car the first time around Philadelphia.  I had taken public transportation when I lived there and it was nice to drive around in a rental car - even though it was frustrating (too much traffic, really rude people LOL)

4.  Seeing the movie Rocky and recognizing my neighborhood at the time.

5.  Coming back to the street I grew up on after leaving Philadelphia and seeing how SMALL it was!


View Home in a larger map

OK sorry only 5 today but of course the main memories for me are my family who are still there and my loved ones who aren't and who I learned a LOT from!

Some more fun Philly links:

How to Speak Like a Philadelphian

http://www.phillyfunguide.com/

Thursday, July 8, 2010

I won! I won - a Versatile Blogger's Award!

WoW!  I am really, really honored, shocked AND surprised.  Thanks Shalunya for giving me this award and I feel the same way - like it's an Oscar or maybe a Grammy - but that's another story LOL!

I do want to thank my loyal readers, commenter's, looky lous LOL.  I only have 22 followers but that's ok - they are a GREAT bunch!

OK according to the rules I have to:

Rule #1: Thank the person who gave you the award.

http://gypsyshalunya.blogspot.com/

I love Renee's spirit and I hope I can truly be one of her online friends to guide her through the world of "chronic Illness" and life afterward

Rule #2: Share seven things about yourself.

1.  For a person that wants to be published I have a fear of being rejected!  Crazy huh?  I would love to write a children's book and a fictionalized version of my life (no one would believe the real stuff LOL).

2.  I LOVE most musicals!  I love old ones from the 30's, 40's and I learned the soundtrack to Sound of Music and West Side Story before I saw the movies.

3. I got brave one day and sang karaoke.  OK so I was a little drunk and the crowd was small LOL but I did it.  I sing in the car and don't care if someone sees me LOL.

4. I grew up wanting to be either a teacher or a veterinarian.  Each one you had to go to college and I goofed off in high school.  I think I have too much heart to be a vet and a teacher - well I think I've taught people plenty of things over the years and I'm proud of that.

5. Guilty pleasure - right now shortbread cookies from our local grocer and Big Brother!  I watched the first time around and then when Dan won, last year I got the live feeds where you can watch 24/7 and this year I am revved up for it LOL.

6. I believe in past lives and I have a fascination for Victorian style houses (and dollhouses).  I think I might have lived in the late 1800's, early 1900's.

7.  Pet peeves - people who stop and look at accidents UGH, ignorance - if you don't know and shoot your mouth off SHAME on YOU, people who throw trash out their windows, on the ground, etc.  Yep I used to be one of them but thanks to Rich I even wrap my gum and put it in my purse until I get home LOL.

Rule #3: Pass the award onto 15 bloggers who you have recently discovered and you think are are fantastic!!

1.   Alley Art Studio - got me started to blog!
2.   Carolyn @ BBDish
3.   Gypsy Shalunya
4.   Every Woman Has Her Chair
5.   Serial Drama
6.   Linda Peterson Designs
7.   Desperately Seeking Salem
8.   Heidi Borchers
9.   Oh My Aches and Pains!
10. Chronic Babes
11. Friendly Plastic
12. The Invisible Disease . . .
13. It's Time to Get Over Fragile You Are
14  Liz Welch’s ramblings on Friendly Plastic and Other Matters

Thanks again Shalunya for this award - I am truly honored!

Tuesday, July 6, 2010

Hey can you be on my team?

OK thanks to Jenni I'm working my slightly heated brain for her upcoming Blog Carnival.

When you think about teams or team mates you think of sports, or even some workplaces.  When I was in high school let's just say sports was not my thing since I was a bit klutzy back then.

I know when I've become sick my husband Rich was always there.  From pleurisy when our daughter Amy was a few months old to Hepatitis C a few years ago.  I knew though that when Rich was going through extreme depression I had to depend on others to help me understand, and counseling has helped us both.

I can call my mom - still - and talk to her about me, my behavior, my aches and pains.  I talk about Rich and his behavior, too, but the funny thing about my mom - she doesn't take sides.  Good answer, Mom!  Our (Rich and I) doctor is great.  He'll great you with a smile and a hand outstretched and even a hug every once in a while.  I have a few people from my online support groups I've been in, and it's always nice to talk about stuff other than what medications we are on and what are their side effects.

I also have friends online that know sometimes I can't get off my couch most days, and like me anyway.  My friend Bev asked if I was interested in crafts - that was one of the best days of my life.  Even though she has a brain injury and walks with a walker it doesn't take away from what a great crafter and person she is.  We chat online or on the phone - minimum time usually is an hour - and we make each other laugh.  Now that's a team mate!

I also have hope and a sense of humor on my team.  I try and make the bad times a little better and always hope that tomorrow will be better.

I hope you get to read some of my other "team mates" blogs this time around after you've read mine.

Sunday, July 4, 2010

LDN and other random "stuff"

http://chronicfatigue.about.com/od/treatingfmscfs/p/LDN.htm

Rich had gone to our naturopath because he's having tummy troubles.  Dr. Albin knows I have fibromyalgia and arthritis.  He wrote down naltrexone.  Of course I looked it up and figured "how would a drug that helps people get off narcotics help me?"  Next time Rich went (after I hadn't called Dr. Albin about the drug) and had another note "low dose naltrexone and fibro - look up together".  Ahhh now I remember seeing that in About.  Nine comments and 8 comments seemed to say it helps.  Wish me luck and if you know someone that's taken it or if you've taken it and the results - let me know if you would.

Happy Independence Day America!  I am lucky to live here.  There are flaws but I'm glad I have the right to voice my opinion OUT LOUD without the threat of being killed.  I like watching documentaries, especially about other countries.  I watched "Afghan Star" recently and again loved the country I am in.  I'm writing this blog and thankful I'm not being censored.  I love two movies that are shown on this day - Yankee Doodle Dandy and Independence Day, and I usually record and watch them.

Wouldn't it be nice if this ever happened?  Aliens come to destroy the Earth and the President (Bill Pullman) addresses the pilots that are planning to destroy the aliens:


The President: Good morning. In less than an hour, aircraft from here will join others from around the world. And you will be launching the largest aerial battle in this history of mankind.

Mankind -- that word should have new meaning for all of us today.

We can't be consumed by our petty differences anymore.

We will be united in our common interests.

Perhaps its fate that today is the 4th of July, and you will once again be fighting for our freedom, not from tyranny, oppression, or persecution -- but from annihilation.

We're fighting for our right to live, to exist.

And should we win the day, the 4th of July will no longer be known as an American holiday, but as the day when the world declared in one voice:

"We will not go quietly into the night!

We will not vanish without a fight!

We're going to live on!

We're going to survive!"

Today, we celebrate our Independence Day!

Hope everyone reading this has a great Independence Day and in other countries - have a wonderful day.

Jacquie Lawson's Fourth of July e-card

Trailer for Yankee Doodle Dandy 1942

Guinness World Record Firecrackers

Guinness World Record Fireworks Display

Thursday, July 1, 2010

*8 Things - Simply Summer

Well I do like this topic - http://www.magpie-girl.com/ - *8 Things you want to do this summer

Here are mine:

1.  Eat lots of fresh local fruit - we have blueberries, raspberries and watermelon in the fridge right now and I ate a handful of raspberries washed after lunch

2.  Go to the coast

3.  Go to the State Fair

4.  Drink plenty of Snapple Iced Tea LOL

5.  Go outside and watch the local fireworks on the 4th (or even get some and set them off).

6.  I would also like to eat outside - even if it's our back yard.

7.  Eat mango sorbet on hot days - YUM

8.  Enjoy the sunshine!

OK very short but it would be great if you can tell me YOUR 8 things for summer?